European Crohn's and Colitis Organisation (ECCO)
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+43-(0)1-710 2242-0
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News, Articles & Press Releases
16-Mar-2016ECCO'16 Press Conference: ECCO-EFCCA Patient Guidelines
Austria, 16-Mar-2016 / European Crohn's and Colitis Organisation (ECCO) ,

Press conference at the 11th Congress of ECCO – Inflammatory Bowel Diseases (Amsterdam, March 16, 2016)

The highly anticipated ECCO-EFCCA Patient Guidelines have been presented at the Press conference on March 16, 2016 at the RAI Amsterdam.

Following on from the highly productive task force meeting of November 23, 2015, the last few months have been a flurry of activity in finalising the patient guidelines. Much progress has been made between the working groups and the final touches were put into place in anticipation of the final ECCO-EFCCA Patient Guidelines release, which took place during the ECCO’16 Press conference on March 16, 15:00-16:00, at the 11th Congress of ECCO, Amsterdam.

The process has been a collaboration between both working groups, Ulcerative Colitis (UC) and Crohn’s Disease (CD), and has been a challenging yet rewarding task for those involved, and will be a key step in providing a greater understanding for patients affected by IBD.

The process has been summarised below with input from the patients, nurses and physicians of both groups;

“Out of all ECCO Consensus statements in the current ECCO Guidelines on Crohn’s Disease (CD) and Ulcerative Colitis (UC) for health care professionals, 50 statements each for Crohn’s Disease and Ulcerative Colitis have been carefully selected to become the core of the CD and UC Patient guidelines. The focus has been put on the clinical symptoms, diagnostic approach and management of active disease and maintenance of remission – the key topics a person living with IBD would be interested in. Symptoms and treatment of frequent external manifestations of the disease have also found their place in the guidelines. The document should help IBD patients to better understand their disease, the agreed therapy algorithms and ultimately result in better treatment and improved quality of life”.

A shared glossary and visual aid will also be included in the Patient Guidelines to further help patients in their understanding of IBD.

‘The ECCO-EFCCA Patient Guidelines will be published on various channels (ECCO Website, EFCCA Website, IBD Patient Society Websites, ECCO News, Patient journals, etc.) in March 2016 after being presented at the ECCO'16 Press Conference on March 16, 2016 in Amsterdam.

For photos of the Press Conference, please visit

About ECCO

The European Crohn’s and Colitis Organisation (ECCO) is the largest forum for specialists in IBD in the world. ECCO is a highly active non-profit association focusing on IBD, acting inside Europe and encouraging collaboration’s beyond Europe’s borders. ECCO produces the highly regarded scientific guidelines, organises educational activities, promotes research and represents IBD specialists in gastroenterology, surgery, paediatrics, pathology, radiology and allied professions, working with patient associations and industry to reduce the burden of disease for patients.

About the 11th Congress of ECCO

Around 5,500 delegates are expected to join the 11th Annual Congress of ECCO in Amsterdam on March 16-19, 2016. It is the largest IBD Congress in the world. Find more information on and watch the video of the 2015 Congress here.

Public awareness campaigns

ECCO has organised the following campaigns to raise public awareness about IBD at past ECCO Congresses:
Perspectives on IBD Quality of Care 2014
Join the fight against IBD 2013
Join the fight against IBD 2012Please find further information online.


The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) is an umbrella organisation representing 29 national patients’ associations from 28 European countries and 3 associate members from outside Europe. EFCCA aims to work to improve life for people with IBD and give them a louder voice and higher visibility across Europe and beyond.

Travel and logistics: Contact the ECCO Office for further information:
Kevin McCluskey, Congress project manager
Tel: +43 (0)1-710 2242; e-mail:

sent by ECCO Office
ECCO Office
Ungargasse 6/13
1030 Vienna, Austria
Phone: +43-(0)1-710 22 42
Fax: +43-(0)1-710 22 42-001

Note: ECCO'16 Congress, RAI Amsterdam, March 16-19, 2016


For further information
Irish Medical Information
Karen Ramirez

PO Box 364, Naas,
Co. Kildare

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